I’ve taken agency in the treatment of my bone cancer (osteosarcoma in the T5 vertebrae of the upper spine). After I’ve ran out of standard of care treatment options and there were no trials available for me I’ve started doing: maximum diagnostics, created new treatments, started doing treatments in parallel, and scaling this for others.

Elliot Hershberg wrote a great and extensive article about my cancer journey.

My cancer journey deck is embedded below, there also is a recording of an OpenAI Forum presentation. Please scroll further on this page for my data and other information.

I think the medical industry can be more patient first, see this great article by Ruxandra https://www.writingruxandrabio.com/p/the-bureaucracy-blocking-the-chance

For my data please see https://osteosarc.com/ that includes my treatment timeline and a data overview doc with 25TB of publicly readable Google Cloud buckets.

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